Denver: The Final Report

We went to Denver with three big questions:
1. Why are Caden's bowel's not responding to the maximum treatment for EGID? (ie, why is he still having such major symptoms)
2. Why does he gorge on a food the first day, eat half as much the second day, then refuse to eat the food thereafter? Is he reacting and I just can't see it?
3. How can we reduce the amount of time he spends on his backpack? (He currently gets 2-3 hours off in every 24)

We got three answers, with varying levels of satisfaction.
1. He has something more going on than just an EGID. We ruled out two really scary things and got sent home with a list of three other things to check out with the GI here. Since the GI here was out of ideas, it at least feels good to have a list of ideas to work through, even if there aren't any answers yet.  I made an appointment today and the soonest we can get in to our local GI is December 26.
2. People eat for two reasons. Either they are hungry or they really like the taste. Due to being on continuous feeds Caden is never hungry, and the formula can mess with your taste buds making everything just a little sour. In other words, he can likely eat the stuff, he just has no motivation. We can help correct that through a specified feeding regimen (see below).
3. By completely changing the way we mix his formula, when we give it to him, and how we give it to him we should be able to decrease the amount of fluid he needs in order to get his calories. As a bonus, this will help encourage oral eating. This will be a long process (they estimated at least a year to be eating 3 foods), and it won't be easy (he's been throwing up quite a bit since we started it Wednesday), but hopefully the long term reward will be worth it.