We've decide to put Caden on a feeding tube. We have tried all the other treatments for his EE/EC and this is our last option. I realize he doesn't look 'that sick,' but the persistant symptoms and pain he has justify it and he is 'that sick.'He got an NG tube yesterday and so far seems to be doing really well with it. He carries his pump and formula around in the little backpack, so he is able to be pretty mobile. Right now he is hooked up to the feeds for 18 hours a day. We hope to be able do decrease that as he shows he can tolerate the formula.
He is scheduled for surgery on July 30 to get his G tube (the button in his tummy).
We have no idea how long he'll be on the tube. At a minimum 3-6 months, but it could be years. He'll initially be on just the special formula, then we'll reintroduce foods one at a time. The amount of time he's on the tube and formula totally depends on how he responds as we reintroduce foods.
This is a fun picture I took after a trip to the allergist a few weeks ago. While there they did some skin prick testing, which makes his back itchy. To distract him, the doctor offered stickers. Caden determined they were bandaids and attempted to use them to soothe his "little pokes."
2 comments:
ugh I'm so sorry that you guys had to go this rout! Poor kid heaven knows that his allergies would have been plenty for him and You to deal with but to add EE/EC on top of it hardly seems fair! I'm so glad that he is handling it so well! He will be one tough strong man when he grow us!
Oh my goodness! He's such a cute sweetheart, I am sorry you had to go that route, although I am sure you don't want people's sympathy - sorry :). So he can't eat any food then? How is he handling that? Or does food just make him so sick, he doesn't want to eat it anyway? God bless you Ryan and Tiffany! Love, Tonee
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